Sunday, April 20

It is finally here, I am headed to MDA clinic to have my EMG done and see what the doctors can tell me. Masan is going with me and I have to say he is really happy about it, all the tests that he has had he thinks it is funny that it is mom's turn to be shocked and poked on=) Yesterday seemed like one of his worst days in awhile. We spent most of the day at Rob and Kim's house, at one point he was playing with Prestan and he fell down and hit the back of his head on the sidewalk. Bless his heart he didn't want Kim to see him cry so he buried his face into me and stayed there until he was done crying. Rob and Kim have a large yard with a pool and hot tub so of course just like the other kids Masan wanted to explore which was great to see him playing but every time I looked up he was either crying or on the ground cause he had just fell. We went to the neurologist on Thursday and he agrees that Masan is getting weaker, but said there is nothing that he can do other than to send him to the MDA clinic (we have already been there). At one point during the appointment he suggested Masan maybe suffering from something else as well, but in order to find out for sure they would have to run another series of tests. For being just 6 I think he has already had to endure enough pain, so for now we will just sit back and keep an eye on him and see if he continues to rapidly progress. I hope that this blog has been some kind of help or at least comfort for other parents that may be going through the same thing that we are. May God bless you all and you families!

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