Who has the answers?

It just don't seem like Thursday, I think it is cause I had so much that I needed to get done and usually we have all of our appointments on Monday and Tuesday. Why was today so different you ask? Well as of Monday April 7, 2008 Masan will be back in the St. Joseph School District, so today we had to go to the doctor and get all of his paper work signed and dated. We were given an order for a wheelchair so then he had to go get fitted for that also. I can't express how hard it was to see my angel sitting in this wheelchair, although he doesn't need to be in it full time right now he is to be in it if we are going any distance. Personally I think the doctors are trying to come up with ways to keep him from getting the leg cramps, I hate to burst their bubbles but so far nothing that they have suggested has helped. Dr. Kosse said that they have filled out Masan's referral from Dream Factory and his nurse was getting ready to send it as we were leaving. It is so funny to see these people, who have watched Masan grow over the last six years, they are so concerned and sympathetic now. But at times you feel like asking "Where the hell was all that concern and sympathy when I first stated that there was something wrong?" Now they are all baffled with no answers and the only words they can bring themselves to say is they will help in any way they can....Okay then help I WANT ANSWERS!!!!!! I want to know why? why him? why now? why is it so freaking severe? What do I tell my six year old when he asks me if he will ever be able to run and play like his brothers? What do I tell him when he asks why he can't play outside in the snow? Why are there so many question and no one has any answers for me? Okay well I hope you all have a very beautiful day filled with happiness. God Bless!