Our story of how an inherited disease called Charcot-Marie-Tooth has affected our lives and how we live with it.
Wednesday, April 16
Yesterday Masan had a real good day! He played during recess (not hard but at least he played). I think that he is used to going back to school and what a brave little boy he is for riding the bus. Up until last week he had never rode with anyone but his dad or me, watching him get on the bus and get buckled in you would think he has been riding it for years. I am inspired by the courage that he shows every single day. Tomorrow is our check up with the neurologist, I am hoping that it goes okay. Last week the doctor ordered lab work to be done on Masan, well the nurse called to let us know the results. Somehow Masan has elevated Calcium levels and lowered Potassium levels. I find these results amusing because he don't eat dairy and eats 2 bananas everyday. Please if anyone one is reading this that has CMT let me know if you are experiencing any of the same symptoms. Well I hope that you all have a blessed day and I will let you know what the neurologist has to say.
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